RARE DISEASES  PREVENTION, DIAGNOSIS, TREATMENT

    Satellite Workshop

    "MARKETING AND ACCESS TO ORPHAN DRUGS"

    The workshop will take place on 1st March 2008 in Plovdiv as a satellite event of the 3rd Eastern European Conference on Rare Diseases and Orphan Drugs "Rare diseases - prevention, diagnosis, treatment". Invited speakers will present current state-of-the-art and tendencies for marketing and access to orphan drugs (60-90 minutes). After a coffee break, a questions & answers interactive discussion on topics of interest will be delivered.

     

  • Workshop details:
    • Date: 1st March 2008
    • Time: 16:30-19:30
    • Venue: Novotel, Plovdiv
    • Official language: English (Bulgarian translation when needed)

     

  • Moderators:
    • Dr. Rumen STEFANOV - director of ICRDOD & expert at the Rare Diseases Task Force (RDTF), European Commission
    • Dr. Kerstin WESTERMARK - chairman of the Committee for Orphan Medicinal Products (COMP), EMEA
    • Dr. Stephen GROFT - director of the Office for Rare Diseases, National Institutes of Health (NIH), USA

     

  • Invited speakers:
    • Dr. Emil RAINOV - vice minister, Ministry of Health, Bulgaria
    • Dr. Nina RASINA - director, "Drug policy", Ministry of Health, Bulgaria
    • Dr. Domenica TARUSCIO - director, National Centre for Rare Diseases, Italy
    • Dr. Sonja van WEELY - Steering Committee of Orphan Drugs, Netherlands

     

  • Workshop participation fee:
    • Government officials: no fee (preliminary confirmation by 27.02.2008)
    • Representatives of patient associations: no fee (preliminary confirmation by 27.02.2008)
    • Industry/Pharmacy representatives: 700 euro / representative

     

  • More information and registration:

 

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